As One Foundation

Less than a week left to join the Virtual Darling Dash! 🏃♀️💨 🎖️ Race medals + swag will be MAILED straight to you! 📸 Don’t forget to tag @asonefoundation and use #DarlingDash5K to show off your dash! 👉 Register now: https://lnkd.in/ez9a64S4 #AsOneFoundation #SickleCellAwareness #SickleCell #darlingdash2025

You're invited! Join Vertex Patient Educator Taylor Francis for an exclusive dinner and educational session on Vertex Gene Therapy for Sickle Cell Disease 🍽️🧬 🗓️ Date: Thursday, May 1, 2025 ⏰ Time: 6 PM CST 📍 Location: Chapman & Kirby, 2118 Lamar St, Houston, TX 77003 Come learn about the science behind gene therapy and how it’s helping patients take control of their sickle cell journey 💪🏾 📧 To register or get more info: taylor_francis@vrtx.com Let’s educate, connect, and empower together! #SickleCellAwareness #VertexEducators #GeneTherapy #HoustonEvents #PatientEmpowerment #HealthEducation #AsOneFoundation

YOU can support us by registering for the 15th Annual Darling Dash Virtual 5K for Sickle Cell now extended through April! Register now: https://lnkd.in/ejd-Fszx... Get your medal mailed to you, run or walk your 5k (or whatever), then post your results with #DarlingDash5K and tag @asonefoundation . #DarlingDash2025 #RunForACause #SickleCellAwareness #asonefoundation

He is Risen—and with His resurrection, we are reminded of the power of love, sacrifice, and new beginnings. This Easter, the As One Foundation celebrates the gift of life and the strength of community. We are eternally grateful for each of you who continue to walk with us on this journey to bring awareness, education, and support to those impacted by sickle cell disease. As we gather with our families and loved ones, may we reflect on the purpose that guides us and the faith that sustains us. Together, let us continue to rise—as one. Wishing you a blessed and joyful Easter. —The As One Foundation Family #HeIsRisen #Easter #AsOneFoundation

Have you listened to our last Trait Space Support Group? Listen here! https://lnkd.in/easpzeaK #asonefoundation #sicklecell #sicklecellawareness #sicklecelltrait #traitspacesupportgroup

URGENT: Our Community Needs You. The elimination of the CDC’s Sickle Cell Data Collection Program is a devastating blow to the progress we’ve fought so hard for. This program is not just data — it’s the backbone of research, policy, and care for sickle cell warriors across the nation. We must fight together to protect it. As a united sickle cell community, we refuse to be erased. The Consortium stands firmly in this fight and urges every advocate, every organization, every caregiver, and every warrior to take action. Call. Email. Speak up. The time is now. Let’s show the power of our collective voice. Take 2 steps and make your voice heard: https://buff.ly/uP0WZ4s We are resilient. We are relentless. We are the movement. We stand in unity with @scdaa @sickcells #wefightwewin #sicklecellstrong #sicklecellawarenes #sicklecell #asonefoundation REPOST @sccconsortium @scdaa

🚨🎉 BIRTHDAY FUNDRAISER ALERT! 🎉🚨 Today is Devard & Devaughn’s birthday and we’re celebrating the birthday in a meaningful way—with an easy & fun Double Good Popcorn Fundraiser from April 16-19! Click here to purchase your popcorn today: https://lnkd.in/egW9VrxT Don’t forget to say happy birthday in the comments. You can also support by liking and sharing this post on your social media platforms. #HydrateAdvocateEducate #AsOneFoundation #DoubleGoodFundraiser #BirthdayFundraiser

🧬💬 APRIL TRAIT SPACE - Support Group! 💬🧬 April is overflowing with health awareness observances—and we want YOUR voice and leadership at the center of it all. 💪🏾💜 Join us for our monthly TRAIT SPACE Meetup as we explore ways to recognize and activate around key health topics impacting our community. 📅 Date: Tuesday, April 15, 2025 🕢 Time: 7:30 PM EST / 6:30 PM CST 🔗 Join Us: https://lnkd.in/eCf5Bnba This month includes: 🩺 National Minority Health Month 🧠 Stress Awareness Month 🍷 Alcohol Awareness Month 🌍 World Health Day (April 7) 🌸 Endometriosis Awareness Month 🩸 Blood Donor Month 🦷 Oral Health Month 🧩 Autism Awareness Month 🌾 IBS Awareness Month 🧠 Parkinson's Awareness Month 🧬 National Youth HIV/AIDS Awareness Day (April 10) 📋 National Healthcare Decisions Day (April 16) 🍼 Infertility Awareness Week (April 20–26) Each of these observances intersects with the lived experiences of our TRAIT SPACE community. This is a time to: 🔹 Share your ideas and stories of ways you honor these observances 🔹 HELP WANTED - Step up as a lead coordinator to help shape our annual calendar and content 🔹 Your voice belongs in this space. #TRAITSPACE #AprilAwareness #HealthEquity #SickleCellTrait #CommunityLeadership #MinorityHealthMonth #StressAwareness #EndometriosisAwareness #BloodDonation #YouthHIVAIDSAwareness #InfertilityAwareness #WorldHealthDay #LetsTalkHealth #AsOneFoundation

🍿 Our Double Good Popcorn fundraiser kicks off in just a few days — and trust us, you don’t want to miss it! When you shop Double Good’s award-winning popcorn, 50% of every purchase supports the As One Foundation’s mission to educate, advocate, and fund research for Sickle Cell Disease and Trait. 🙌🏾❤️ 🎯 Shop now, snack with purpose: https://lnkd.in/egW9VrxT #AsOneFoundation #DevardDarling #DoubleGood #Fundraiser #SnackForACause #PopcornWithPurpose #SupportTheMission

✨ It's almost time! Join us April 23–27, 2025 for the 9th Annual Leadership Summit, the premiere training + advocacy event for the sickle cell community. 🗓️ Save your seat: sicklecellevents.org #LegacyOfLeadership #SC3Turns10 #SickleCellStrong #AsOneFoundation