MLD HOME Study

EveryLife Foundation for Rare Diseases

Public Policy Offices

Washington, District of Columbia

Global Genes

Non-profit Organizations

Washington, 20005

Rare Disease Day

Non-profit Organizations

RARE DISEASES INTERNATIONAL

Civic and Social Organizations

Paris, Ile de France

RARE-X

Data Infrastructure and Analytics

Washington, District of Columbia

EURORDIS-Rare Diseases Europe

Non-profit Organizations

Paris, Paris

Muscular Dystrophy Association

Non-profit Organizations

Chicago, Illinois

National Organization for Rare Disorders (NORD) at NCSU

Education

Raleigh, NC

RARE Revolution Magazine

Media Production

Alford, Aberdeensire

The Rare Disease Company Coalition

Pharmaceutical Manufacturing