Sciensus’ Post

Exciting News from the World Orphan Drug Congress USA! I am honored to be moderating a session at the World Orphan Drug Congress USA in Boston on April 22 from 1-2PM EST, titled "Breaking into Europe: Partnerships that Propel US Biotechs to Orphan Drug Success." One of our esteemed panelists is Kathy Senecal, a retired educator and the founder and Executive Director of the New England Chapter of the FSHD Society, who lives with Facioscapulohumeral muscular dystrophy (FSHD). I had the pleasure of meeting Kathy in Boston this past weekend, and I was thrilled to meet her and her lovely daughter. Both are strong advocates for the FSHD community. Their dedication and passion for raising awareness and supporting those impacted by FSHD are truly inspiring. I am grateful to be working for Sciensus, a company that not only values the patient voice but also incorporates it into our partnership solutions. It is a privilege to be part of an organization that prioritizes patient advocacy and strives to make a positive impact on the lives of those affected by rare diseases. Stay tuned for more updates from the World Orphan Drug Congress USA and join us in celebrating the incredible work being done to support the rare disease community! #WorldOrphanDrugCongress #RareDiseases #PatientAdvocacy #FSHD #Sciensus #Partnerships #Biotech