"Great initiative! Ensuring the voices of the PKU community are heard in drug development is crucial. The egoo.health Team are committed to empowering individuals with PKU by providing innovative and accessible home testing solutions. #PKU #Health #Innovation #MedTech #BioTech
Mark your calendar for May 8, 2025, for the TruePKU meeting – a first-of-its-kind opportunity for members of the PKU community to share their experiences, needs, and treatment priorities directly with the U.S. Food and Drug Administration, life science companies with active PKU programs, researchers, and healthcare professionals. The TruePKU meeting, which is an “externally-led patient-focused drug development meeting,” is a collaboration between CanPKU+, the National PKU Alliance, and other metabolic disorder advocacy organizations around the world. The meeting will be virtual and streamed live for free, and the recording will be available immediately for on-demand viewing. Learn more about TruePKU, externally-led patient-focused drug development meetings, and how you can stay informed and participate atnpkua.org/truepku. #truePKU, #PFDD, #patientfocused, #PKU, #phenylketonuria
