Foundation for Sickle Cell Disease Research

The Symposium is where knowledge is shared, voices are heard, and the future of sickle cell disease research and care is shaped. Will you be there? 19th Annual Sickle Cell Disease Research and Educational Symposium & the 48th National Sickle Cell Disease Scientific Meeting 📅 June 6-8, 2025 | Fort Lauderdale & Virtual 🔗 Register: https://lnkd.in/e58zFGhf #FSCDRSymposium #SickleCell #SickleCellAwareness #PatientVoicesMatter #SCDCommunity #StrongerTogether #SickleCellEducation #MedicalBreakthroughs

Upcoming Webinar: Advancing SCD Care Through Workforce Development, Advocacy & Policy As part of our Sickle Cell Disease Workforce Development Program, we invite healthcare administrators, policymakers, and care providers to a powerful live session focused on shaping the future of SCD care. What You’ll Gain: ✔️ Proven strategies for workforce training ✔️ Insights into effective advocacy methods ✔️ Updates on policy developments impacting SCD ✔️ Innovations in care that improve patient outcomes Who Should Attend: Healthcare leaders, physicians, NP/PAs, nurses, pharmacists, psychologists, and social workers committed to improving the SCD care landscape. Broadcast Date: Wednesday, June 11, 2025 | 1:00 PM EST (10:00 AM PST) Duration: 1 Hour Cost: Free Earn 1.0 Continuing Education Credit (ACCME, AAPA, ACPE, ANCC, APA, ASWB) Join us to drive systemic change and elevate care for individuals living with Sickle Cell Disease. 🔗Register here: https://lnkd.in/etj4evXJ #SCDWorkforce #HealthcareLeadership #PolicyAndAdvocacy #HealthEquity #SickleCellAwareness #ContinuingEducation #FSCDR #HealthcareTraining #PublicHealth #WorkforceDevelopment

Are you a community-based leader working to improve the lives of individuals living with sickle cell disease?  This is your chance to grow your impact and expand your reach! 📝 The Grant Writing Institute 📅 Thursday, June 5, 2025 📍 Fort Lauderdale, FL Join us for a powerful one-day training where you'll: ✔️ Learn from experienced community leaders ✔️ Turn ideas into compelling proposals ✔️ Receive 1 year of mentorship to help you hit your fundraising goals Whether you're just getting started or ready to level up, the Grant Writing Institute is your key to sustainable growth and stronger communities.  🔗 Limited seats available — secure your spot today! Register here: https://lnkd.in/ec2Gpwtu #GrantWritingInstitute #FSCDR #SickleCellAwareness #NonprofitLeadership #FundingYourMission #CommunityImpact #SickleCellWarriorSupport #CapacityBuilding #HealthEquity #CommunityBasedOrganizations #FortLauderdaleEvents

Research and Data Insights  Sickle Cell Disease Knowledge and Practices Among Healthcare Providers: Results of a National Survey Read the Study: https://lnkd.in/eZGJi57w The National Heart, Lung, and Blood Institute (NHLBI) conducted a national survey to identify self-reported awareness and knowledge gaps specific to SCD care among healthcare providers. The primary objectives of the research were to: 1. Assess healthcare providers’ knowledge of SCD and their knowledge of, perceptions of, and experience with managing the care of patients with SCD. 2. Understand how healthcare providers treat and support patients with SCD. 3. Identify opportunities for SCD education and address gaps in treatment needs. Read the study to see the results. Myth vs. Fact  Myth: Standard infection control measures are sufficient for sickle cell disease patients. Fact: Sickle cell disease patients are often immunocompromised, requiring heightened infection control measures in clinical settings. Resources:  Infection Control: https://lnkd.in/e6muMt-K Guarding Health: https://lnkd.in/eYPBGBKW Infections in Sickle Cell Disease:

Live Webinar: Empowering Patients With Sickle Cell Disease Through Navigation, Outreach, and Support  Join us for an insightful session designed to equip healthcare and mental health professionals with strategies to support individuals living with Sickle Cell Disease as part of our Sickle Cell Disease Workforce Development Program. What You'll Learn: ✔️ Best practices in patient navigation & advocacy ✔️ Effective psychosocial support strategies ✔️ Enhancing mental health awareness in SCD care ✔️ Real-world approaches to empower both patients and caregivers Who Should Attend: Psychologists, psychiatrists, social workers, community health workers, physicians, NP/PAs, nurses, and pharmacists committed to holistic SCD care. Broadcast Date: Tuesday, June 17, 2025 – 6:00 PM EST 🎓 Continuing Education Credits Available: ACCME, AAPA, ACPE, ANCC, APA, and ASWB – 1.0 CE credit This is part of our Sickle Cell Disease Workforce Development Program—a vital initiative to advance multidisciplinary training and improve long-term outcomes for SCD patients. 🔗 Register here: https://lnkd.in/ehenYs9v #SickleCellAwareness #HealthcareWebinar #WorkforceDevelopment #MentalHealthMatters #SCDCare #PublicHealthEducation #SocialWork #PharmacyEducation #PatientAdvocacy #FSCDR #SCDSupport

The Annual Sickle Cell Disease Research & Educational Symposium and the National Sickle Cell Disease Scientific Meeting return June 6–8, 2025 in Fort Lauderdale, FL! This powerful 3-day event brings together world-renowned researchers, healthcare providers, advocates, and Sickle Cell Warriors from around the globe  Hosted by the Foundation for Sickle Cell Disease Research (FSCDR), the Symposium is where innovation meets collaboration to build a stronger future for sickle cell care through research, education, and connection. Whether you're a provider, patient, or advocate this is your space to learn, connect, and impact change. Mark your calendars and join the movement this June! Register here: https://lnkd.in/e7WNrYBH #FSCDRSymposium2025 #SickleCellAwareness #SickleCellWarrior #HealthEquity #ResearchMatters #CommunityOfCare #FSCDR #PublicHealth #ChronicIllnessAwareness #HealthcareInnovation #FortLauderdaleEvents

Live Webinar: The Latest Advances in Precision Diagnostics for Sickle Cell Disease  Join us for an in-depth, free webinar designed for healthcare and research professionals focused on improving outcomes for patients with Sickle Cell Disease as part of our Sickle Cell Disease Workforce Development Program. Live Session: Tuesday, May 20, 2025 at 12:00 PM EST This 1-hour session will cover: ✔️ Best practices in lab testing for SCD ✔️ Routine bloodwork, hemoglobin screening & iron overload monitoring ✔️ Inflammatory & coagulation markers ✔️ Organ damage biomarkers & imaging advancements Who Should Attend: Research & lab technicians, physicians, advanced practice providers (NP/PA), nurses, pharmacists, psychologists, and social workers. Earn 1.0 Continuing Education Credit (ACCME, AAPA, ACPE, ANCC, APA, ASWB) Elevate your approach to care with the latest research and tools in precision diagnostics for sickle cell disease. 🔗 Register here: https://lnkd.in/epx-kJYx #SickleCellCare #PrecisionDiagnostics #HealthcareEducation #ContinuingEducation #SickleCellAwareness #FSCDR #LabMedicine #SCDResearch #ClinicalWebinar #HealthcareProfessionals #SickleCellSupport

A Study: Transition from Pediatric to Adult Care There is a significant shortage of adult care providers with the requisite knowledge and skill set for sickle cell disease patients. This gap in expertise leads to a sharp increase in mortality following the transition from pediatric to adult care, with the ages of 15 - 24 experiencing a sevenfold increase in mortality. Specialized training can help bridge this critical gap. Reference:  https://lnkd.in/esFujGaS Myth vs. Fact  Myth: Sickle Cell Disease is a contagious blood-borne illness.  Fact: Sickle Cell Disease is not contagious. It is a genetic condition present at birth, caused by inheriting abnormal hemoglobin genes from both parents. If a child inherits one sickle cell gene from each parent, they are born with SCD. Unlike infectious diseases, it cannot be transmitted through contact, blood transfusions, or any other means. Think of it as hereditary, much like hair or eye color   Resources: 

Sickle Cell Disease Workforce Development Program Presents: Precision Diagnostics, Imaging, & Lab-Based Monitoring Are you a research or lab tech, clinician, or public health professional working with patients who have Sickle Cell Disease (SCD)? This free, live, multi-accredited webinar is for YOU. In this session, expert faculty will explore: • Routine blood work and hemoglobin screening • Iron overload monitoring • Inflammatory/coagulation markers • Biomarkers for organ damage 📆 Date: Tuesday, May 20, 2025 🕛 Time: 12:00 PM EST ⏱️ Duration: 1 Hour 💰 Cost: Free 🎓 Earn 1.0 CE/CME Credit (ACCME, AAPA, ANCC, APA, ASWB, NABP) 📈 Stay on the cutting edge of diagnostics and improve outcomes for patients living with SCD. 🔗 Register Now: https://lnkd.in/epx-kJYx #SickleCellAwareness #FSCDR #SCDWorkforceDevelopment #LabTechTraining #PrecisionDiagnostics #ContinuingEducation #SCDResearch #HealthcareProfessionals #PublicHealthEducation #LinkedInLearning #ClinicalTraining #MedicalEducation #SickleCellCare #EquityInCare

Mental Health Matters in Sickle Cell Care Join us for Mental Health Webinar, Session #1: Empowering Patients with Sickle Cell Disease as part of our Sickle Cell Disease Workforce Development Program. This 1-hour live, multi-accredited webinar focuses on mental health awareness, patient navigation, advocacy, and psychosocial support strategies tailored for the SCD community. Learn expert approaches to: • Patient navigation and outreach • Providing compassionate, whole-person care • Supporting emotional and psychological wellness in SCD Who should attend? Psychologists, psychiatrists, social workers, CHWs, physicians, NP/PAs, nurses, and pharmacists committed to advancing care for sickle cell warriors. 📅 Broadcast Dates: • Tuesday, June 17, 2025 – 6:00 PM EST • Monday, June 23, 2025 – 6:00 PM EST 🎓 Earn 1.0 CE/CME credits (ACCME, AAPA, ANCC, APA, ASWB, ACPE) ✨ Don’t miss this opportunity to strengthen your impact and improve outcomes for patients living with SCD. 🔗 Register now: https://lnkd.in/ehenYs9v #FSCDR #SickleCellAwareness #MentalHealthInSCD #WorkforceDevelopment #HealthcareTraining #SickleCellSupport #PatientAdvocacy #SCDCare #PublicHealth #CECredits #CompassionateCare #HealthcareProfessionals #LinkedInHealthcare