Epilepsy Foundation New England

Despite efforts by organizations like ours, a lack of understanding about #epilepsy persists—as seen in a recent report where an employee was told by HR she was allowed “three seizures a month”: https://bit.ly/42130Be Whether for you or a loved one diagnosed with epilepsy, to access real resources and support, please visit: https://bit.ly/3VF5Kz2 #EpilepsyAwareness #EpilepsySupport #EpilepsyStrong #EpilepsyWarrior

Infantile spasms typically present between 3 months to 9 months in 90% of cases and often result in developmental delay or regression, making early recognition and prompt treatment critical. Dr. Tiffani McDonough explains more in this webinar on-demand: https://bit.ly/4iREaeh #EpilepsyAwareness #EpilepsySupport #EpilepsyStrong

💜 Join us this weekend on Saturday, April 12th! We’re coming together for the Empowering Women with Epilepsy Conference at the Hyatt Regency Boston/Cambridge—a full day of education, discussion, and support focused on the unique experiences of women living with epilepsy. Hear from expert speakers on topics like dating and relationships, pregnancy planning, hormones, diet, catamenial epilepsy, and more. 🎟️ $25 registration includes brunch, program access, and resource booths. 📍 Hyatt Regency Boston/Cambridge 🕙 10 AM – 4 PM 👉 Register today: https://bit.ly/4iqbYyG #EmpoweringWomen #EpilepsyAwareness #EFNE #UnitedForEpilepsy #EpilepsySupport

Join us Wednesday, April 16 at 7 PM for our next Wednesday Webinar: "Seizure Medications 101: Medication Management and Side Effects" with Dr. Rani Sarkis from Brigham and Women’s Hospital. We’ll cover how seizure meds work, common side effects, and tips for staying on track with treatment. Register now: https://bit.ly/42hVAd0 #EpilepsyAwareness #EpilepsySupport

🗓️Mark your calendars for a can't-miss Wednesday Webinar that will explore the relationship between #epilepsy and cannabinoid science as presented by Jazz Pharmaceuticals. 💜 Register for free: https://bit.ly/4iSkCq4 #EpilepsyAwareness #EpilepsySupport #EpilepsyStrong

Earlier this week, the CDC issued Reductions in Force (RIF) notices to staff in its National Center for Chronic Disease Prevention and Health Promotion Epilepsy Program. This is part of a broader RIF at the U.S. Department of Health and Human Services, affecting other agencies like the National Institute of Neurological Disorders and Stroke and the FDA, which also play vital roles for #epilepsy research. The CDC Epilepsy Program is the only national public health initiative focused on epilepsy, providing training in seizure recognition and first aid, conducting research, and implementing self-management programs. It also connects epilepsy specialists with primary care providers in rural areas. Want to share your voice about this and other issues? Become an ENVOY with Epilepsy Foundation New England. Connect with Bill Murphy & Kristen Gordon today! https://lnkd.in/e4uUBFSu

Ahoy! See you tomorrow as we set sail to "Charting Connections" with Sail for Epilepsy. Featured speaker and sailor Dr. Phil Haydon will share his #epilepsy story with fun activities to follow! ⛵️ Learn more: https://bit.ly/4j3OsHM #EpilepsyAwareness #EpilepsySupport #EpilepsyStrong #EpilepsyWarrior

Ready to learn more about #epilepsy and its impacts? Don't miss Southern New England Epilepsy Day, where featured experts will discuss a variety of epilepsy-related topics, covering all ages. The cost is $10 and boxed lunch will be provided to all attendees. Register today: https://bit.ly/3R7bEcl #EpilepsyAwareness #EpilepsySupport #EpilepsyStrong

The countdown is on for outdoor adventures and endless fun this summer at #PurpleCamp. Our family-friendly, inclusive environment is the perfect place to make memories and build lifelong friendships. 💜 Register today: https://bit.ly/3VXNWzC #Epilepsy #EpilepsySupport #EpilepsyStrong

Did you know early intervention can make a huge difference for children with epilepsy? Emily Daggett shares her own journey about how specialized schools helped her daughter thrive from day one. Catch the full webinar on-demand: https://bit.ly/3QRvokc #EpilepsyAwarness #EpilepsySupport