Dysautonomia International

April is #SjogrensAwarenessMonth! Sjogren's is the second most common cause of autonomic neuropathy. Join us on Thursday, April 10th at 7PM ET for a free webinar presented by rheumatologist Dr. Brit Adler from the Johns Hopkins Sjogren's Clinic. Dr. Adler will provide an overview of Sjögren's including the impact of symptoms, how it's diagnosed, treatment options and current research. Dr. Adler is a Dysautonomia International research grant recipent who is studying the relationship between dysautonomia and Sjogren's. Even if you can't attend the live broadcast, you can register for the webinar to receive a recording of the lecture a few weeks after the webinar. Register at https://lnkd.in/eJXZKTyU

"This week I had the honor of speaking in-person at the School Nurses Association of North Carolina Conference in Asheville, NC and teaching them all about POTS. My session went really well and lead to lots of great conversations about how to support and accommodate students with POTS in the NC public school system. I never expected this to be the road that life would send me down but it felt like the perfect intersection of my personal health, experience as an educator, IEP and accommodations knowledge and current and past roles at Dysautonomia International all coming together in one perfect moment. This isn’t the journey I would have chosen but I am so thankful for it. I haven’t felt that way every step of the journey (and if you have dysautonomia and don’t feel thankful for it that is 100% valid - a lot of days I am not thankful for it) but I’m glad to be at that point right now." -Charlotte Florez, Director of Events at Dysautonomia International Charlotte and other Dysautonomia International staff and volunteers have been speaking at school nurse association conferences, national physician conferences, county medical societies, medical schools, and more to help educate as many medical professionals about autonomic disorders as possible. If you'd like to support our efforts, you can make a contribution to Dysautonomia International at www.CureDys.org.

April 1 is the deadline to apply for Dysautonomia International 2025 Conference scholarship AND the deadline to nominate an outstanding doctor for our 2025 Physician of the Year Award. Apply for a scholarship, nominate a physician and learn more about our conference at DysConf.org.

Did you know that small fiber autonomic neuropathy in your limbs can correspond to dystomility in your GI tract? That’s because small fiber autonomic nerves aren’t just in your legs or your skin, where they are normally tested. They are found throughout the body and they innervate all of the organs and smooth muscle like the GI tract. Check out this article from autonomic and GI experts exploring this important topic: https://lnkd.in/eKvbmZNY

Join us for Dysautonomia Advocacy Day on May 7th in Washington, DC as we meet with hundreds of members of Congress to advocate for more dysautonomia research and more effective treatments and cures for over 40 million Americans living with a form of dysautonomia! Sign up at bit.ly/DysAdvocacy2025

Getting an accurate blood pressure reading is important to accurately diagnose and manage many forms of dysautonomia. Did you know there are many different factors that can influence the accuracy of blood pressure measurement? Here are just a few of them…

Researchers recently published the first case report on treating inappropriate sinus tachycardia (IST) with transcutaneous vagus nerve stimulation: https://lnkd.in/ebZYqpWG.

Dysautonomia International is seeking a motivated Director of Clinician Education committed to reducing diagnostic delays and increasing access to high-quality dysautonomia care though our clinician education and outreach programs. Learn more about the position and apply at https://lnkd.in/ea63e-8H

Did you know 42% of school-aged POTS patients have needed modified coursework or scheduling, and 25% have been on homeschooling, due to their POTS symptoms? Download our School Accommodations Checklist and share it with school nurses, teachers, and guidance counselors in your local school districts to help raise awareness! School Accommodations flyer: https://lnkd.in/eCgigsdV Dysautonomia International has been presenting educational sessions for state and county school nurse associations to help students with POTS and other forms of dysautonomia have more support when they need help in the educational setting. If you have any contacts with regional or state school nurse associations that may be interested in hearing a lecture on pediatric autonomic disorders in the educational setting, we'd love to hear from you. Email us at info@dysautonomiainternational.org.

Join Dysautonomia International Thursday, April 10th at 7pm for a free webinar presented by Sjogren's expert Dr. Brit Adler. Dr. Adler will provide an overview of Sjögren's including the impact of symptoms, how it's diagnosed, treatment options and current research. Dr. Adler is a Dysautonomia International research grant recipient who is studying the relationship between dysautonomia and Sjogren's. Did you know Sjogren's is the second most common cause of autonomic neuropathy? Even if you can't attend the live broadcast, you can register for the webinar to receive a recording of the lecture a few weeks after the webinar. Register for free at https://lnkd.in/eJXZKTyU