The Voice For Epilepsy

Exciting research opportunity by The University of Birmingham! The University of Birmingham is conducting a study led by Dr. Isabella Marinelli exploring the link between stress hormones and epileptic activity. You will be asked to wear two devices - the U-RHYTHM, a hormone collector, and an ambulatory EEG - for about a day to simultaneously measure cortisol levels and brain activity.    You will be compensated £270 for your time and travel expenses and subsistence up to £150 will be covered.    Who can participate? ✔️People over 18 years old with a clinical diagnosis of epilepsy ✔️Those with drug-resistant epilepsy (refractory epilepsy) ✔️Individuals reporting stress as a trigger for their seizures   Who cannot participate? ❌People with known sleep disorders  ❌Those on medication that could influence the study results (e.g. sleep medication, antidepressants, acting on cortisol profile) ❌Night shift workers  ❌Individuals who have travelled across more than two time zones in the past 60 days.  ❌Those using illicit substances or regularly consuming alcohol beyond the NHS-recommended weekly limit of 14 units.   If you are interested in taking part or have any questions, please email i.marinelli@bham.ac.uk with the subject ‘IAA EPSRC Study’.  #epilepsyawareness #epilepsy #epilepsystudy #epilepsystrength #epilepsycommunity #epilepsywarrior

Did you know stress can be a trigger for seizures in some people with epilepsy? Common stress symptoms include poor sleep patterns, anxiety, tension headaches and mood swings.  Prioritising stress management is important for overall well-being and seizure control. This could include:  ✔️Practicing meditation and relaxation techniques  ✔️Prioritising good sleep hygiene  ✔️Talking to friends, family, or a therapist  ✔️Engaging in regular physical activity #Epilepsy #Stress #Anxiety #Seizure #mentalhealth  #epilepsyawareness

Did you know a seizure isn't always convulsions? Seizures can manifest in many ways, including: 🟣Loss of Consciousness or Awareness 🟣Staring Spells 🟣Jerking Movements 🟣Stiffening of the Body 🟣Falling and loss of balance 🟣Unusual Sensations or Behaviors 🟣Loss of Bowel or Bladder Control 🟣Breathing Problems 🟣Rapid Eye Blinking or Twitching 🟣Changes in Sensory Perception To learn more about epilepsy visit our website: https://lnkd.in/e_ak-UQA #epilepsy #epilepsysupport #epilepsystrength #epilepsywarrior #epilepsyeducation

A massive THANK YOU to everyone who painted the world purple for epilepsy awareness on Purple Day! 💜 Your support is incredible and truly makes a difference. Watch our video to see some of the amazing people who joined us! #TeamPurple #PurpleDay25 #RaisingAwarenessforEpilepsy #Epilepsy #SeizureFree #EpilepsyResearch #EpilepsySupport #EpilepsyDay #EpilepsyAwarenessMonth

Meet Kate Green, who was born with a rare genetic disorder called Hypomelanosis Ito Syndrome, known as incontinentia pigmenti achromians. Kate has had various different types of epilepsy since she was born. Her journey highlights the many challenges she has faced and the impact it has had on her and her family. "My epilepsy is called the “unannounced visitor” as it never signs the visitors book and leaves damages on me." Follow the link to learn more about Kate's story: https://lnkd.in/eWyEnh7x #nhsengland #nhs #epilepsywarrior #epilepsyawareness #publicawareness #epilepsyeducation

Being a supportive friend to someone living with epilepsy can make a huge difference. Here's how you can help: 💜Learn about epilepsy to better understand their experience 💜Work together to create a seizure action plan so you both know what to do 💜Most importantly, offer your ongoing support and understanding Head over to our website to learn more about living with epilepsy: https://lnkd.in/e_QVM-uA #epilepsyawareness #epilepsy #epilepsystrength #epilepsycommunity #epilepsywarrior

Seizures don’t always look like what you see in movies. They can be subtle, and symptoms vary from person to person. Some early warning signs can include: ✔️Dizziness ✔️Headache ✔️Racing thoughts ✔️Tiredness ✔️Nausea ✔️Numbness or tingling ✔️ Aura (a strange sensation before a seizure) We would like to hear your seizure warning signs, share yours in the comments. #seizures #epilepsyawareness #nhs #health #publicawareness #epilepsystrong

Let's talk openly about SUDEP (Sudden Unexpected Death in Epilepsy). 💜 While it's a difficult subject, honest conversations and dedicated research are crucial for protecting lives.  Understanding SUDEP empowers individuals and families. Let's break the silence and increase understanding together. In remembrance of those we've lost to SUDEP, we invite you to share their stories (if you feel comfortable) in the comments below. Your voice can help others feel less alone. #sudep #epilepsyawareness #epilepsy #epilepsysupport #epilepsywarrior

#thevoice4epilepsy #purpleday #purpleday25 #awarenessday #epilepsy

Happy Purple Day 2025!  Let's have some fun, we want to see your most creative purple looks! Show us your outfits, your socks, cakes, anything purple.  Don't forget to #TheVoiceForEpilepsy! #TeamPurple #PurpleDay25 #RaisingAwarenessforEpilepsy #Epilepsy #SeizureFree #EpilepsyResearch #EpilepsySupport #EpilepsyDay #EpilepsyAwarenessMonth