CanChild Centre for Childhood-Onset Disability Research

Are you an occupational therapist working with children and youth (0-24 years)? Help us explore the role of occupational therapy in supporting individuals with Ehlers-Danlos Syndrome (EDS) by completing a short online survey. Your insights will contribute to necessary research—and you’ll have a chance to win a $100 gift card! 🌟 For more information, email Sandra VanderKaay at vandes22@mcmaster.ca

Understanding 24-hour movement behaviours, physical activity, and sedentary time is essential for children's health and development. The 24-hour Activity Checklist for CP, originally developed in the Netherlands, has now been translated and culturally adapted for use in Brazil and Portugal! 🔍 Why is this important? This tool enhances communication between families and healthcare professionals, supporting tailored interventions for healthier movement behaviours in children with CP.

"Empoderar para crescer" é o lema deste #WordDay2025 destinado a aumentar a consciência para a situação de jovens vivendo com uma doença reumática. Somos gratos de poder contribuir com a nossa experiência de incluir pacientes, pais e cuidadores em nossas pesquisas para esse evento importante promovido na plataforma da Sociedade Brasileira de Pediatria Marque o dia 18 de março, Horário Brasil: 18:30 h - 20:05 h BRT em sua agenda para assistir vários bate-papos em torno do tema. Programa completo anexo.

A CanChild affiliated post-doctoral fellow, Dr. Monika Novak Pavlic, was recently awarded a Canadian Institutes of Health Research Post-Doctoral Fellowship Award (2025-2027). Over the next three years, Dr. Novak Pavlic will be focused on exploring child engagement in pediatric rehabilitation services with four of Ontario's leading Children's Treatment Centres.

This study explores parents' perspectives on the implementation of the Canadian English version of the Computer-Based Instrument for Low-Motor Language Testing (C-BiLLT-CAN) for children with cerebral palsy and speech and motor limitations. These findings, alongside clinician input, will guide adaptations to improve C-BiLLT-CAN’s implementation in the Canadian clinical context. Read more: https://lnkd.in/gk_K2-6c

🌟 Abstract submissions for #MCHRD2025 are open! 🌟 Join us on March 26, 2025, at McMaster University’s Student Centre for McMaster Child Health Research Day (MCHRD). This premier event brings together investigators, learners, clinicians, and families to spotlight cutting-edge research and innovations in child health. Abstracts are now being accepted from learners and research staff in child health with a supervisor in the Faculty of Health Sciences, as well as parent & family partners and new investigators. 📅 Submission deadline: February 26, 2025, at 11:59 PM EST 🔗 Submit your abstract and find all event details at the website below. https://lnkd.in/effaWRkV Don’t miss this opportunity to showcase your research and contribute to shaping the future of child health.

Developmental central hypotonia describes children with decreased muscle tone due to non-progressive central damage, and includes many genetic conditions, cerebral palsy with hypotonia as the main motor type, developmental delays and congenital hypotonia with favorable outcome. This recent review aims to systematically describe the best available evidence for interventions that may be used by early intervention therapists in home and community settings. Read more: https://lnkd.in/gcriuGAc

✨ Que experiência incrível! ✨ Chegou ao fim a Cipedia, o primeiro congresso internacional organizado pela equipe apaixonada da Pediatherapies, em Jundiaí, São Paulo sob a liderança científica da nossa ex-aluna Beatriz Helena Brugnaro Marques! 🇧🇷✨ Tivemos a honra de participar como representantes do CanChild, centro de pesquisa que há 35 anos desenvolve estudos para melhorar a vida de crianças com deficiências. Nosso co-diretor Olaf Kraus de Camargo veio acompanhado pelas colegas Rachel Teplicky, @Danijela Grahovac e Kim Hesketh, que ofereceram um curso sobre os famosos F-words – as minhas palavras favoritas! https://lnkd.in/gC6NQAET Eles traduzem a CIF (Classificação Internacional de Funcionalidade, Incapacidade e Saúde da OMS) para uma linguagem acessível, revolucionando a forma como trabalhamos com abordagens centradas na família ao definir intervenções terapêuticas. Nas suas palestras, Dr. Olaf compartilhou reflexões sobre: 🔹 A evolução da relação entre profissionais de saúde e pacientes, com foco nas famílias; https://ow.ly/Gf4g50UWqOj 🔹 Um guia prático para ajudar pais a escolherem as terapias e clínicas mais adequadas para seus filhos; https://ow.ly/WKEq50UWqOk 🔹 E, para fechar o congresso, uma visão sobre o futuro da reabilitação pediátrica e as inovações que estão por vir! 🚀 https://ow.ly/WEYE50UWqOl Saímos de lá inspirados por um público incrivelmente engajado, curioso e determinado a transformar a qualidade de vida das crianças com deficiências. 💙 Obrigado, CIPEDIA! Que venham muitos outros eventos como esse, ajudando a espalhar ideias transformadoras pelo Brasil e pelo mundo! 🌍🙌

Parents of children with disabilities face stress, frustration, and trauma in pediatric healthcare—this study highlights the urgent need for family-centered, respectful care. Read more: https://ow.ly/YA5F50UBzuv

A study of 1,144 children with severe orbital infections highlights key factors, including male sex and proptosis, influencing early CT imaging. Read more: https://ow.ly/RI7t50UBzBI